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Sunday, June 29, 2008
Orions weekend
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Friday, June 27, 2008
!!!!!!!ORION-PALOOZA!!!!!!!

!!!!!!!ORION-PALOOZA!!!!!!!
6 pm -Darin Layne and the Crying Monkeys
7:30 pm Chelle Murrey and the Chelle Murrey band
Thursday, June 26, 2008
Talk, Orion, talk!
His physical therapist walked with him around the room and had to remind Orion not to look at his feet while walking, saying he needed to teach himself to do some things without looking. Immediately I thought I should probably get some physical therapy for my typing - I always look at my hands. Thanks God for the genius who invented spell check!!
Orion is progressing fantastically with his speech although his walking, double vision, balance and coordination have greatly been affected by the AVM's pressure on his brain. As I understand it, the bruising will go away and with Orion's determination and with time, he will get back to normal. No telling how long he will be in rehab. We had been told approximately a year but then again we were told he would take much longer to do everything he has already accomplished in less than half the time predicted. Way to go Orion!
We are going to see if there is anyplace in Austin where the cute little red head can have inpatient services for his rehabilitation. Hopefully this can be sooner than later. Will let you know. Please keep up the prayers! They are lazar lights to heaven, brightening Orion's path to getting better.
Love to all, Orion's Nana Colleen
Tuesday, June 24, 2008
Orion's in San Antonio!
Once the ambulance crew came to transport him, he got a bit nervous and Matthew had to spend some time with him to calm him. Although he had told me and the nurse that he knew where and why he was being moved, I think when the time came, it was scary for the little 9 year old.
He is supposed to be at Warm Springs for 2-3 weeks to re-learn how to properly talk and walk.
Please continue to keep him and his folks in your prayers. Thanks!
We hope to see you at Hills Cafe this Sunday evening.
Love to all, Orion's Nana Colleen
Sunday, June 22, 2008
Orion-Palooza June 29th Hills Cafe (reminder)
Are you ready for some fun???
Hills Cafe Sunday June 29th 6-9pm
4700 South Congress Ave, Austin, TX 78745 (512)851-9300
Come to our fun(d)raiser! Fun, food, adult beverages, child beverages, and fabulous music
6 pm -Darin Layne and the Crying Monkeys
7:30 pm Chelle Murrey and the Chelle Murrey band
We are going to have a 50/50 bowl whereby tickets will be sold for a dollar each and at the end of the night the ticket picked will get the winner 50% of the ticket sale proceeds, the other half goes into the Orion fund.We are going to have a cake and pie sale (any donations will gladly be accepted)!We are also going to have a silent auction to include a dinner for two at Texas Roadhouse, a Kaleidovision (superior, upscale kaleidoscope), baskets of body products from So.A.P. SouthAustinPeople as well as a number of other items.
Make your plans to attend! Come join the fun and help at the same time! No particular charge at the door, donation only, as you see fit. No host - cash bar and menu from Hills. Please come!
Hungry Boy!
He had wanted to go outside for a bit of sunshine (no lack of that here lately!) but by the time we got through, he was pretty tuckered out and wanted a nap. Before he fell asleep, he asked me to order more food since it takes about 45 minutes to come to the room and he thought he might be hungry again by the time he awoke. Wow, if he's eating this good while he's a still a very sick little 73 pound boy, imagine the grocery bills for is folks when he's a teenager!
The attached video was taken last October when Matthew took Orion and me to Cypress Valley zip line tours for Ri's birthday.
Saturday, June 21, 2008
Orion Unplugged!

The staff told him and us that as long as he eats well, he shouldn't have to have the feeding tube re-inserted. Orion asked for food immediately! He does not want anything plastic inside him ever again in any way, shape, or form.
We are all hoping that perhaps with no tubes stuck down his throat he may be able to enunciate his words that much better. He is working so hard to communicate. Even though I know there is still frustration there, he is working with what knowledge he is given daily. One can see the force in his head, willing his mouth and lungs and voicebox to become in sync once again. He is trying so hard and he will succeed.
Although there has been talk of a rehab facility in San Antonio, that may be a bit premature as he is still very weak physically. Orion is working day by day, making each day a good one - as good as possible. We can learn from him.
Love to all, Orion's Nana Colleen
Orion's hat

Friday, June 20, 2008
Orion, the outstanding student
Thursday, June 19, 2008
Orion's tryin'

Now the good part. Last night, he was watching his dad play video games and had a smile on his lips with every wreck and wheeley done on screen. When his dad went out to get some food, I handed him the controls and showed him how and where to press the buttons. He could only press one button and it was a hard one but he kept it up for about 2 minutes or so. I imagine that is one physical therapy exercise he won't mind working on. Really though, the problem with it is that he does remember doing it so well that he's extra annoyed with his hands for not obeying his bruised up brain's signals. It will all work out!
Please keep visualizing him as completely well and every step it takes for him to get there.
Thanks so much for all the love being sent to this cute little red head.
Thanks for all the notes and calls and especially thanks to his cousins Isabelle, Sophia, and Eva for their faxed note to the hospital! We love you girls!
Love to all -Nana Colleen
Wednesday, June 18, 2008
Orion-Palooza!!!! Sunday June 29th 6-9pm


Then come to our Orion-Palooza! It's our fun(d)raiser! It will be at Hills Cafe Sunday June 29th
from 6-9pm. Fun, food, adult beverages, child beverages, fabulous music with Darin Layne and also Chelle Murrey whom I can honestly say has a magnificent talent for music and has the most beautiful voice I've ever heard! Darin is an exceptional guitarist and is so good that ACC snatched him up as a guitar instructor!
We are going to have a 50/50 bowl whereby tickets will be sold for a dollar each and at the end of the night the ticket picked will get the winner 50% of the ticket sale proceeds, the other half goes into the Orion fund.
We are going to have a cake and pie sale (any donations will gladly be accepted)!
We are also going to have a silent auction to include a dinner for two at Texas Roadhouse, several nice household items among other things, but especially we have a Kaleidovision (superior,
upscale kaleidoscope) that will be part of the silent auction. Any of these will be wonderful to own -these Kaliedoscopes are great adult toys!
Make your plans to attend! Come join the fun and help at the same time! No particular charge at the door, donation only, as you see fit. No host - cash bar and menu from Hills.
Tuesday, June 17, 2008
He's good!!!!
Dr. Rutledge feels that Orion has at least a year of recovery/rehab in front of him because, as he put it, Orion's cerebellum really took one heck of a hit and it will take a long time recovering from that. So thank you everyone for your continued prayers. He needs it and we all need it.
Now, speaking of problems inside of heads, I wonder if Dr. Rutledge can do anything for me????
Hhhmmm, probably not. Y'all are stuck with me the way I am!
And ain't life grand.
Love to all, Orion's Nana Colleen
Please pray for Orion -Another Operation!
Anyone who might be reading this today, PLEASE stop and say a prayer for Orion. His MRI showed another AVM albeit a smaller one. Dr. George was prepared just in case this happened. I will post more information as soon as he is out. Think positive! Pray positive!
Love, Nana Colleen
Monday, June 16, 2008
Orion gets to eat!

When I pulled into the parking lot this afternoon, Uncle Jeff was just pulling out (I got his rock star parking place). He told me that Orion was going to get to eat today!
Hooray!!! Real food! Inside the hospital, Uncle JP, who was only able to stay a short time, told me that Orion had ordered macaroni and cheese, pudding, and some gatorade. How much more real can you get?????
After taking and passing some more physical therapy tests today, Orion was given the green light for solid foods. Boy was he ever ready to eat! By the time they brought his mac and cheese, he was tired from being up so much during the day and the two therapy sessions, so he only ate about 5 or 6 bites of the mac and cheese that his dad fed him and a few sips of the gatorade but over a period of an hour or so, he ate one and a half cups of the vanilla pudding.
About 5:30 or so, the nurse came in to check on his very sore back and she told us that he could order whatever he'd like from the kitchen to eat throughout the evening but that he needed to order soon as the kitchen closed at 6:30. I told him I would read the menu to him and to squeeze my hand when I read something he wanted.
Any breakfast foods? Waffles or pancakes for the pancake king? No squeeze.
Oatmeal or cream of wheat? No squeeze.
OK. Let's get to the lunch and dinner items. I don't think corn would be so good right now. How about steamed carrots like your dad always has for you? No squeeze.
Small milkshake? SQUEEZE
Rice? SQUEEZE
Buttered noodles? SQUEEZE
Broccoli? SQUEEZE
Green beans? SQUEEZE
Roasted turkey? SQUEEZE SQUEEZE SQUEEZE
"Ri, I've got to stop there. I know you're hungry, but I think that's more than enough for tonight. You only have until midnight and then you can't eat again until after you MRI at 1pm tomorrow. Bummer of a deal, isn't it? But, woo hoo for now. You get food!"
By the time the food came, Ri sipped a bit of the chocolate shake, ate some of the noodles, slowly counting the 30 chews for each bite, then he was exhausted. Before he fell asleep, I asked him if he wanted me to send back the food. Two very wide eyes opened and stared at me as if I were crazy while his head slowly moved from side to side, an emphatic "NO".
Although I only got to spend just a couple of hours with the babe today, they were a very good 2 hours.
Please continue to pray for Orion and his folks. Prayers got him this far and will take him all the way!
Love to all, Orion's Nana
Sunday, June 15, 2008
A (somewhat) Brief History
June 2, 2008 approximately 7pm Austin time: we each received a call from Aris's boyfriend that Orion was in a coma. He told us that he, Aris, her brother Finn, and Orion had been zip-lining and that Orion had a headache and didn't want to go after the first line. He said they tried to encourage him to finish with them and when he didn't want to, I remember Mark saying that they told him to wait for them for the next hour and a half that it would take them to finish out. From what I remember, Mark said they came back from their zip line tour and Ri was convulsing, he vomited, and then passed out. They rushed him to a clinic who sent him and Aris by ambulance to the children's hospital in San Jose, approximately 4 hours away given the bumpy roads. He and Finn went back to check out of the hotel and grab the cell phone which is when they called Matthew and me.
The rest of the evening, Matthew and I were on the computer getting the best tickets possible for Costa Rica. I gather all my work and literally dumped it on my partner and niece, Eileen, not knowing when I'd be back. Matthew and I left just after midnight for Houston, going to Matthew's brother's home. Mark Fierro was definitely a godsend - helping us to get organized, loaning me a proper suitcase, giving us some cash which we were low on, and taking us to the airport so that we wouldn't have to worry about the car at all.
We left at 5:50 am and after a change in Atlanta, arrived in San Jose at noonish. A cab dropped us off at the Hospital Nacional de Ninos on Calle Colon where we were met with friendly but curious stares as I realized I definitely wasn't dressed for a Central American summer day and I was dragging along my suitcase. At the time, though, the only thing on our collective mind was Orion. Matthew went upstairs first after obtaining a pass from the information desk. When he came back down so that I might go up, he looked devastated. He wanted to warn me but had a hard time talking.
Matthew took me up and when I arrived in the intensive care unit, I saw our sweet little boy lying flat on his back with his eyes half open although there was some type of balm over his eyes, I imagine was to protect them from drying out. There were tubes coming out of him all over the place but when his daddy spoke to him, his eyes darted all around giving us our only indication that he knew his father was with him. We stayed until Aris returned a few hours later and then got a hotel room, one that the doctor suggested. We were told to come back later that evening.
We couldn't sleep and we hadn't eaten since the day before so we stopped at a restaurant 2 blocks from the hospital and walked in as after another man. As it turned out, that other man was the evening chef and the owner greeted us and told us that although the place was closed, he would personally fix us a meal. It was a fine meal of filet mignon, medium rare, with vegetables. It was great and his kindness towards us was so appreciated. By the time we left, we realized that he had guessed why we were there in his city and he told us he would pray for our nino.
June 4, 2008 7:30 am
We all met with 4 or 5 doctors who told us that other than the drain they had placed in his head, there was not much more they could do for Orion except wait for the swelling to go down. They did not answer very many of our direct questions pertaining to his chances of recuperation. Finn got the doctor from Dell Children's Hospital on the line so that he could be a part of the meeting. One of the doctors told me afterwards, when I asked him directly about Orion's chances of survival, that the way Orion's was at that time, he wouldn't give him more than a 25% chance of making it, much less chance of ever being the Orion we love.
It was determined that Orion would be air-lifted home, which Finn arranged with the help of several individuals he knew back home. Thank God for all of them doing their part.
As only one parent could fly with Orion, Matthew and I again called our lifeline, his brother Mark Fierro and found out a flight was leaving back to Houston at 1 pm. It was 11:00 by this time. Matthew handed Aris the insurance card he had for Orion, we gave the babe a kiss goodbye, asked his angels to protect him, and we ran to check out and grab a cab back to the airport. What a visit to Costa Rica! It seemed we had been there in a dark haze for so long yet 28 hours after we had arrived, we were headed back to the states, back to all the love and prayers everyone had for Orion.
June 5, 2008 3:45 am
Grandpa (Julio) and Matthew were at the hospital waiting for the precious one to arrive at the emergency room. By 8am Aris, Matthew, and I were in a meeting with Dr. Timothy George who agreed with the prognosis that the Costa Rican doctors had given us, figuring it was an AVM rather than a tumor or an aneurysm. He said Orion's window of opportunity was fast closing and he felt that he should operate right away. We asked how soon this would be and he said he had the operating room ready, he just needed the parents permission.
What was supposed to hav ebeen a 4 hour operation turned into a 7 and a half hour one but the doctor was cautiously optimistic about everything and said Orion should come out of his coma in 3-5 days and then we'd know a lot more. Here come the thousands of prayers from family, friends, and strangers alike. and God heard! Matthew was spending the night with Ri and about 6 hours after the operation, Ri opened his eyes and responded to his father's voice!
The next morning everyone was amazed and we heard a word that doesn't often seem to be uttered by a doctor very often, and how very "miraculous" it was.
Now here it is ten days later, and Orion is struggling so we still need everyone to continue to pray for him. I'm sure that besides the tremendous frustration that he's confused and angry. I know I would be if my mind said one thing and my body refused to follow through.
Please, please pray for Orion and his parents.
Love to all, Orion's Nana
Saturday, June 14, 2008
Orion's in charge

I just returned home after sitting next to Orion for several hours while his dad got some dinner and a bit of down time. It was very peaceful and relaxing saying the rosary, meditating, and just looking at the cute little boy. Matthew had said Orion had gone through another very frustrating day and seemed a bit depressed. His nurse informed us of what we really already knew, that he will have good days and not so good days. Although all of us know this is typical of the ebb and flow of life, it is so hard to watch the low times hit your child or grandchild whom you love so dearly. By the time I got to the hospital about 5:45 pm, Matthew was calming Ri down, helping him to rest. Matthew had said Ri wasn't even interested in going for a walk in the wheelchair. Today was so very hard on Matthew, as he tries so hard to keep up a good attitude and a cheerful smile for the babe. When he left and Ri was resting, I got to relax, too. To reiterate, it was very peaceful sitting there, watching him sleep.
It seems Orion has not only been very frustrated because of the lack of oral communication, but because he feels powerless. So tonight, his dad and I made sure that he knew he was in charge of the following:
- the remote control
- his wires that are attached to him
- his sheets
- his pillows
But mostly his dad tried to remind him that he is in charge of his thoughts and his imagination.
Matthew wanted to make sure Orion felt he was in control of at least a few aspects in his life there in that room. He also knew Orion was still upset with having to undergo a sponge bath by a female nurse while his mother was in the room earlier in the morning. So, it was requested that Matthew would always be the one to help Orion give himself a sponge bath and when Matt wasn't around and if at all possible, a male attendant would help Orion. Hopefully, this won't have to be the only bathing option for too terrible long.
Wow! I don't know from what reserve Matthew gets his patience and understanding but I could shout it from the rooftops that Matthew Fierro is the best father in the world!
So Happy Fathers Day Matthew!!!
And Happy Fathers Day to all the good fathers out there!
Orion and his Dad

Our love to all, the Nance and Fierro Families