This morning Orion got his feeding tube removed from his nose with quite a bit of discomfort on his part. The kid is brave and, in spite of the pain, worked very well with the nurse practitioner.
The staff told him and us that as long as he eats well, he shouldn't have to have the feeding tube re-inserted. Orion asked for food immediately! He does not want anything plastic inside him ever again in any way, shape, or form.
We are all hoping that perhaps with no tubes stuck down his throat he may be able to enunciate his words that much better. He is working so hard to communicate. Even though I know there is still frustration there, he is working with what knowledge he is given daily. One can see the force in his head, willing his mouth and lungs and voicebox to become in sync once again. He is trying so hard and he will succeed.
Although there has been talk of a rehab facility in San Antonio, that may be a bit premature as he is still very weak physically. Orion is working day by day, making each day a good one - as good as possible. We can learn from him.
Love to all, Orion's Nana Colleen
The staff told him and us that as long as he eats well, he shouldn't have to have the feeding tube re-inserted. Orion asked for food immediately! He does not want anything plastic inside him ever again in any way, shape, or form.
We are all hoping that perhaps with no tubes stuck down his throat he may be able to enunciate his words that much better. He is working so hard to communicate. Even though I know there is still frustration there, he is working with what knowledge he is given daily. One can see the force in his head, willing his mouth and lungs and voicebox to become in sync once again. He is trying so hard and he will succeed.
Although there has been talk of a rehab facility in San Antonio, that may be a bit premature as he is still very weak physically. Orion is working day by day, making each day a good one - as good as possible. We can learn from him.
Love to all, Orion's Nana Colleen
